Henry is holding his own, but still has a scary road ahead. Below is the latest from Kara, originally posted on her family blog, Three Little Kings. Feel free to stop by there for more detailed updates or to drop her a comment of encouragement. And I promise I will be back tomorrow with some house-related stuff!
A clear picture of Henry is that he is on an oscillator, which has taken over the job of breathing for him so that his body can rest while it fights off the numerous infections which are threatening his life. He is heavily sedated and often needs additional medicine to be paralyzed because sometimes he starts to move around a bit and they have noticed changes in his vitals when this happens. We really need for him to just rest peacefully as the many treatments (antibiotics, blood transfusions, platelets, etc) do their work.
Our sweet boy does not look like himself right now. His whole body is swollen from the medications, and while they can give him (and have given) some lasix for this, it's a delicate balance and they have to watch his blood pressure, heart rate, oxygen saturation, ventilation, etc. One affects the other, which affects the other and so on. Sort of like "If You Give a Pig a Pancake," but not nearly as much fun.
The diagnosis of what caused all this (a virus is suspected but not confirmed) is still a mystery and may always be. Last week, diagnosis seemed important. Now, as I watch my baby fight for his life, I don't care what the initial cause may have been. I'm sure I'll care again later, but for now I just want my Henry back.
Scott and I feel so loved and truly appreciate all of the prayers and concern from our dear friends and family and what feels like thousands of others who are lifting us up.
* Continued improvement. We are taking baby steps, but they are in the right direction.
* Our older boys, who haven't seen us much and are also very worried about the brother they adore.
* Strength and endurance for us and for my mom who is watching the kids so much of the time while she is dealing with the emotional toll as well.